Monday Morning 7/18

Jadon’s blood pressure continues to maintain a marginal level but is now requiring four medications.  The doctors have informed the family that the level of blood pressure medications cannot be increased without causing damage to Jadon’s cardio system.  These medications help the heart maintain blood pressure but blood flow to his extremities is minimal.  As a result, the skin tone in his hands and feet have appeared to darken.  Messaging of these areas seems to temporarily relieve this condition.   He has reached the end of what is medically possible and must rely on his body to heal and fight ongoing infections.  He received three units of platelets last night.  His liver and kidney functions are minimal to nonexistent.  As a result, he remains on CRRT (Continuous Renal Replacement Therapy) dialysis.

Jadon is showing longer periods of being awake and lucid.  He still has a tube running to his stomach to remove the residual blood from his fungal debridement site in the nasal area.  This tube prevents him from talking but he does attempt to form words which can be understood most of the time.  The Jadon we all know and love is still with us.  His recovery is now in the hands of our lord and savior.

Addendum to Monday Morning 7/18, 6:25PM
The skin darkening that was apparent last night is more visually pronounced this morning in both feet extending up the ankle.  The cardio physician examined Jadon this morning performing an ECG (Electro Cardiogram) which showed evidence of liquid surrounding the heart.  They returned this afternoon to remove the liquid observed during their first examination by inserting a needle into the chest cavity.  This was necessary to ensure the liquid was not interferring with the heart pumping action thus negatively effecting the blood pressure.  Further examination found nothing to remove.  He is currently being slowly removed from the norepinefrine which is causing the restricted blood flow to his extremeties.  This should restore the blood flow and improve the darkened skin appearance.  His blood pressure is being closely monitored during this process which showed a systolic pressure consistantly above 110 during the cardio doctor's examination/treatment.  The tube in his throat to remove blood draining from his nasal cavity was removed today as well as the packing in his sinuses.  While he his still unable to talk as time passes this condition should improve.

We are cautiously excited about these developments.  I will post any new developments as they become known.